Armenian
Bone Marrow Donor Registry
The Armenian Bone Marrow Donor Registry Charitable Trust was founded in July
1998 in Armenia as a non-profit, non-sectarian, non-governmental and independent
organization. Its mission is to save precious Armenian lives by creating a bone
marrow donor registry which, with the volunteer recruitment of Armenian donors
worldwide, will increase the pool of existing international donors and thus give
a chance of survival to patients with Leukemia or other blood related diseases.
Although Armenians are considered Caucasian, their unique genetic make up makes
it very hard for them to find matches for transplantation. The Trust's honorary
chairperson is the First Lady of the Republic of Armenia, Dr. Bella Kocharian
and the chairperson is Dr. Frieda Jordan, a biochemist whose expertise is the
establishment of bone marrow registries. The ABMDR is a unique project in the
sense that it links the Diaspora with Armenia, making each individual in any
part of the world dependent on the other for survival. That is why we have the
blessing and the encouragement of Karekin Vehapar and President Kocharian, among
many others, not only to go ahead but to realize it in the very near future. To
date, the Trust has raised close to US$60,000. Close to half of that amount was
generously donated by George and Carolann Najarian who are great supporters of
the project, and the other half from a number of individuals and organizations.
Our immediate concern is to get the necessary funds to establish the laboratory
facilities in the US and Armenia where the technicians will start the
recruitment and registration of donors. The plan is to have 10,000 donors within
four years. With the first 500 donors, our registry will be linked with the
National Marrow Donor Program (NMDP) and as such be accessible to all from around
the world. Each donor costs the Registry $75-$100. The facilities and the
recruitment of personnel will cost an additional $150,000. Once the Registry is
fully established the only cost will be that of maintaining the personnel, and
for that, the Trust has foreseen and planned for various ways to become self
sufficient. We would welcome the help and contributions of any organization or
individual out there who is interested in being part of this historic project.